Advisory Councils and Committees

Advisory Council to the Maryland Early Hearing Detection and Intervention Program
 Upcoming Meeting Dates:
Thursday, July 19, 2018
12:30 pm - 2:30 pm 
Meeting Location: 5900 Metro Drive, Baltimore, MD  21215
Please use the parking lot in the rear
Click Here for Agenda
The mission of the Advisory Council to the Maryland Early Hearing Detection and Intervention Program is to provide information, to consult with, and advise the Maryland Department of Health (MDH) to ensure that all newborns receive appropriate, high quality early hearing detection and intervention (EHDI) services. Originally established in 1985 (Chapter 402, Acts of 1985), the Council currently operates in accordance with the Annotated Code of Maryland, Health General Article § 13-603.
The Council has established a strong, positive relationship with the Office for Genetics and People with Special Health Care Needs (OGPSHCN)/MDH and helps to encourage parent and family involvement in the program.
For additional information, you may contact Angela Sittler at

2018 Meetings:

Thursday, January 18, 2018 Time: 12:30-2:30 pm
Thursday, April 19, 2018 Time: 12:30-2:30 pm
Thursday, July 19, 2018 Time: 12:30-2:30 pm
Thursday, October 18, 2018 Time: 12:30-2:30 pm
MD EHDI Advisory Council Minutes: 

Advisory Council on Hereditary and Congenital Disorders 
Meeting Date: Tuesday, June 12, 2018
  5:00 pm 
Meeting Location: 201 W. Preston Street, Baltimore, MD  21201
Room L-3
Meeting number (access code): 644 873 956

+1-240-454-0887 US Toll
You can also dial and enter your meeting number.
The Advisory Council on Hereditary and Congenital Disorders provides advice to the Maryland Department of Health on the policies and procedures regarding the detection and management of these disorders. This body was previously called the Commission on Hereditary Disorders and it was created by Maryland Statute § 13-101 to 13-110. The Council has legislative, medical, and consumer members, which are appointed by the Governor.   The Council considers the incidence of each disease, the effectiveness of treatment, the cost of treatment, public opinion, the opinions of affected individuals and of psychological, ethical, social and economic "experts" in drafting regulations for genetics programs, such as the newborn screening program.   Examples of issues discussed by the council include adding new conditions to the newborn screening panel in Maryland, and the implementation of Health Care Reform with respect to individuals with hereditary or congenital disorders.  The statute establishing the Council requires all genetics programs to be voluntary, to obtain informed consent, to make test results available to the patients and their health care providers, to respect confidentiality, to provide non-directive genetic counseling and to utilize accurate testing procedures and licensed laboratories.
Advisory Council Minutes:

Statewide Steering Committee on Services for Adults with Sickle Cell Disease
The Statewide Steering Committee on Services for Adults with Sickle Cell Disease is a group of sickle cell patients, health care providers, medical insurers, and community representatives, appointed by the MDH Secretary. The Committee is charged with educating Marylanders about SCD and identifying resources and services that could be used to improve the lives of affected residents.
Use the following link to access committee information;

Critical Congenital Heart Disease (CCHD) Screening Expert Panel
The CCHD Screening Expert Panel was created by House Bill 714/Senate Bill 786 (2011) – Newborn Screening Program - Critical Congenital Heart Disease.  This panel was charged with evaluating the feasibility of implementing newborn screening for CCHD in Maryland.  A legislative report was written by the members of the panel, however the legislation also required Maryland to follow the recommendation of the Secretary of Health and Human Services regarding this screening.  In September 2011, Secretary Sebelius adopted CCHD screening to the Recommended Uniform Screening Panel.  Once this screening began in Maryland, in October 2012, the Expert Panel became the CCHD Screening Advisory Council in order to oversee implementation and quality assurance of the screening.  The expert panel will continue to meet 2 to 4 times a year for the next 2 years, after which time its function will be accomplished by the Advisory Council on Hereditary and Congenital Disorders. Membership on this council is voluntary. 
To obtain more information, please call 410-767-6713. 

Office For Genetics And People With Special Health Care Needs
201 West Preston Street - Baltimore, MD 21201
Tel (410) 767-6730   Fax (410) 333-5047