Advisory Councils and Committees

 

  

ADVISORY COUNCIL TO THE MARYLAND EARLY HEARING DETECTION AND INTERVENTION PROGRAM

 

Upcoming VIRTUAL Meeting Date: Thursday, July 16, 2020

  12:30 pm – 2:30 pm
 
 Join with Google Meet

Join by Phone
 +1 847-957-1867 (PIN: 333926970)

Click Here for Agenda (to be added)
         
The mission of the Advisory Council to the Maryland Early Hearing Detection and Intervention Program is to provide information, to consult with, and advise the Maryland Department of Health (MDH) to ensure that all newborns receive appropriate, high quality early hearing detection and intervention (EHDI) services. Originally established in 1985 (Chapter 402, Acts of 1985), the Council currently operates in accordance with the Annotated Code of Maryland, Health General Article § 13-603.
 
The Council has established a strong, positive relationship with the Office for Genetics and People with Special Health Care Needs (OGPSHCN)/MDH and helps to encourage parent and family involvement in the program.
 
For additional information, you may contact Tanya D. Green at tanya.green@maryland.gov.

 
2020 Meetings:
 
Thursday, January 16, 2020 Time: 12:30-2:30 pm
Thursday, April 16, 2020 Time: 12:30-2:30 pm
Thursday, July 16, 2020 Time: 12:30-2:30 pm
Thursday, October 15, 2020 Time: 12:30-2:30 pm
 
​MD EHDI ADVISORY COUNCIL MINUTES  ​ ​ ​
10/17/2019 10/18/2018 10/19/2017 07/21/2016
07/18/2019 07/20/2017 04/21/2016
04/18/2019 04/19/2018​​ 04/20/2017 01/21/2016
01/17/2019 01/18/2018 01/19/2017
  


 

ADVISORY COUNCIL ON HEREDITARY AND CONGENITAL DISORDERS  

Secondary to the current situation with the COVID-19 outbreak the meeting of the Advisory Council on Hereditary and Congenital Disorders will be conducted virtually.  The date and time will remain April 21, 2020 at 5:00-7:00 PM.  Please see below for meeting information.  The video portion of this meeting can be accessed either through a computer or tablet with video capability or a smart phone.
  

Meeting Date: Tuesday, April 21, 2020

  5:00 - 7:00 pm
 
meet.google.com/abt-naeq-xra
Join by phone
+1 920-605-5964 PIN: 826 368 785#
 
 

  
The Advisory Council on Hereditary and Congenital Disorders provides advice to the Maryland Department of Health on the policies and procedures regarding the detection and management of these disorders. This body was previously called the Commission on Hereditary Disorders and it was created by Maryland Statute § 13-101 to 13-110. The Council has legislative, medical, and consumer members, which are appointed by the Governor.   The Council considers the incidence of each disease, the effectiveness of treatment, the cost of treatment, public opinion, the opinions of affected individuals and of psychological, ethical, social and economic "experts" in drafting regulations for genetics programs, such as the newborn screening program.   Examples of issues discussed by the council include adding new conditions to the newborn screening panel in Maryland, and the implementation of Health Care Reform with respect to individuals with hereditary or congenital disorders.  The statute establishing the Council requires all genetics programs to be voluntary, to obtain informed consent, to make test results available to the patients and their health care providers, to respect confidentiality, to provide non-directive genetic counseling and to utilize accurate testing procedures and licensed laboratories.
  
 
 
 
​ ​​HEREDITARY AND CONGENITAL DISORDERS ADVISORY COUNCIL MINUTES
04/23/2019 11/28/2017 12/06/2016 09/01/2015
10/09/2018 10/24/2017 10/20/2016 06/02/2015
​06/12/2018 06/20/2017 06/07/2016 02/03/2015
04/17/2018 05/23/2017 04/05/2016 09/09/2014
01/04/2018 03/07/2017 01/12/2016 06/24/2014
02/07/2017 04/01/2014
01/10/2017 02/11/2014
 

 
Statewide Steering Committee on Services for Adults with Sickle Cell Disease
 
The Statewide Steering Committee on Services for Adults with Sickle Cell Disease is a group of sickle cell patients, health care providers, medical insurers, and community representatives, appointed by the MDH Secretary. The Committee is charged with educating Marylanders about SCD and identifying resources and services that could be used to improve the lives of affected residents.
  
Use the following link to access committee information;
 
 

 

Office For Genetics And People With Special Health Care Needs
201 West Preston Street - Baltimore, MD 21201
Tel (410) 767-6730   Fax (410) 333-5047